Timing Is Everything!
Jordan Adams It’s 1.00pm. It’s Saturday, 9th January 2021. I’m sat on the sofa with Hoshi the cat sprawled half on me…
Living with hydrocephalus.
Have You Tried Switching 2020 Off And Back On Again?
Yo. Long time no write. I hope you’re all as well as can be and holding up okay under what…
Chronic Illness & Work; Employment, Benefits & Never Feeling Guilty.
Working, whilst providing routine, interpersonal relationships, goals, achievements and most importantly Christmas parties, subsidised canteens and the odd office romance,…
I’ll Get Back To You All Very Soon…
Hi Everyone, Sorry for the long absence. I’ve got strings of messages from you all to get through and I…
‘We Need A Cure!’ – Why I Don’t Ever Say That On Here (And Also Why I Understand Why Others Do).
I love September as in my mind it’s the start of Autumn (my favourite season). I run to my own…
I’m Back…So Sorry For The Loooooong Absence!
Yes I am still around…so sorry for the huge gap since my last post! I hadn’t intended to vanish off…
You Asked; I Answered – Shunts, Lifestyle & Strange Feelings.
**03 September update: I’ve been asked a couple of times recently about shunt malfunction symptoms so I’ve just posted the…
Ask-Me-Anything February!
Er…how can it ALREADY be February?! It’s really quite scary. I am still clawing on to Christmas. I know, I…
What’s it really like to have ICP monitoring? (And…AND!! There’s a video!!)
ICP probes and all that jazz ICP monitoring is a term you may have heard of if you have hydrocephalus.…
There’s No Place Like Home; Dorothy Was Right About That.
Hospital Then Home Sweet Home…. Yay! I’m home! Three-and-a-half weeks in hospital, one ICP bolt, six pressure changes and one…