Browsing Tag

happy

Shunt Donation Project – Three shunts = three lives (and another forty are on the way!!)

May 24, 2013

If you’ve just jumped in, you can read more about my Shunt Donation Project (no. 6 on the List) here.

And if you’re wondering what this ‘F-List’ I keep banging on about is, you can read about that here.

Yep – I have shunts.  Three Medtronic shunts – the whole system (valve bit which goes in your head, reservoir bit and all the tubing for the rest of the body).  And a manual.  They’re actually sitting on my kitchen worktop and I can’t quite get my head around the fact that only seven weeks after I started to try and get this off the ground, I actually have some life-saving equipment.

First three shunts.  If this is how happy I am with three, what am I going to be like when the other forty arrive??

First three shunts. If this is how happy I am with three, what am I going to be like when the other forty arrive??

These first shunts were donated by a very kind, very helpful and very supportive lady from a hospital.  I said to her that collecting them on Wednesday made me feel happier than a seven year-old on Christmas morning.  As if that wasn’t enough, the forty shunts from Codman have passed their audit and are on their way!  I don’t usually whoop but, seriously – whoop!
It’s been very interesting journey so far. I honestly expected to be faced with lots of ‘we know you mean well but here are the problems and reasons why you should maybe drop it’ conversations from hospital professionals.  Not because I think they’re mean or negative or anything like that but because I had no clue about what limitations I might encounter, no idea about hospital policies regarding donating unused equipment and no inkling of whether I would be able to persuade them that this was worth doing.  I couldn’t have been further off the mark.  All I’ve had is support, help, encouragement and generosity.  It’s heartwarming.  To think that this is only after the first two hospitals have responded is a good sign.  My initial plan to hit as many as I could at once I had to re-think as it was simply too many names/emails/phone numbers/different stages of development for my shunted brain to keep up with.  This system is working better: choose a couple of hospitals and then hassle the hell out of them until they submit!  (Kidding).
So now I need to get these shunts packed and off to their rightful owners; children currently lying in pain overseas.  Quicker the better; I shall update you soon.  To everyone who has helped and/or sent supportive comments so far, a MAHOOOSIVE thank you.  Let’s keep going, eh!!

Shunt Donation Project – REEEEEESULT!

April 12, 2013

If you’ve just jumped in, you can read about my Shunt Donation Project (no. 6 on the List) here.

And if you’re wondering what this ‘F-List’ I keep banging on about is, you can read about that here.

Ooooh, I am HAPPY today!  I spoke to Mr Mallucci at Alderhey hospital yesterday (his name is pronounced ‘Mal-ooch-ee’ but I managed to call him Mr ‘Malakee’ in our first conversation.  Oops.  I also managed to call him smack in the middle of a very important board meeting.  Double oops.  This did not, however, put him off talking to me and he was so helpful I couldn’t express my gratitude to him enough.  As you probably know by now, Number Six on my ‘F-List’ (kind-of-bucket-list-but-for-approaching-forty: for the proper name just replace the ‘b’ of ‘bucket’ with an ‘f’ for ‘forty) is a project I’ve been planning during my thirties when I’ve been well enough and actually out of hospital/the operating theatres long enough to plan it.  I want to get children and infants in developing countries where hydrocephalus is a very real – and very ignored – problem, with often next to no facilities or care available to them, treated.  So to start with, I’m trying to set up a regular shunt donation programme from the UK to enable these desperately poor countries to at least have equipment available to them to actually perform the surgeries when neurosurgeons are able to get to them.

The Codman-Hakim valve can be implanted in children and either fixed (so the amount of fluid drained is set permanently) or programmable (the amount of fluid drained can be controlled, as shown in the picture).

The Codman-Hakim valve can be implanted in children and either fixed (so the amount of fluid drained is set permanently) or programmable (the amount of fluid drained can be controlled, as shown in the picture).

Mr Mallucci is a neurosurgeon at Alderhey Children’s Hospital in Liverpool and I sent an email to his secretary a few weeks ago explaining who I was, what I wanted to do and why.  I then asked if he could help in any way.  Turns out that he can.  He told me that he was very keen to get on board and has already spoken to Codman (Codman Hakim is a major supplier of shunt valves in the UK).  He said that Codman, like him, were very keen to participate and sounded very positive about setting up a donation system.  He is speaking to them again (I think today) but said to me to leave it to him and he’ll get a first batch of shunts over to me asap.  If hugs could be given over the telephone, he would have got a bear-sized one.  Finding that first open door is a major step forwards; now that it looks like both Codman and Alderhey Hospital will be on board, it should make it easier to get other neurosurgical units and shunt manufacturers (I have all their details – there is no escape) to participate.  So this weekend I shall be completing my email list of all the other neurosurgical units and surgeons I need to contact and keeping everything crossed that they are as keen as Mr Mallucci and Codman….and if that works then I may actually get to start on Number Seven on my F-List.  Who knows…..but today is a good day.  God bless kindly neurosurgeons and shunt manufacturers.